A HUGE thank you to all of you who responded to our COVD & My Care Survey earlier this year - the summary report was made available through our newsletter and is on our website. This report was shared with our rare cancer charity partners Cancer52 as part of a submission back to Government and NHS UK Cancer Leads to inform and influence ongoing cancer care planning and the recovery and restoration of vital cancer care services. Taking this forward - Cancer52 have developed a second patient survey : "with the help of some of our member charities, specifically AMMF, Mesothelioma UK, Neuroendocrine Cancer UK, Pancreatic Cancer Action and Kidney Cancer Support Network. We are very grateful for their insight and time." The survey covers changes to treatment and care, whether people have needed to be tested or isolate before treatment, the impact of the pandemic on different aspects of their lives, and the latest advice to different vulnerable groups. The survey closes on Wednesday 16th December 2020. If you would like to take part - the survey can be found on the News page on the NCUK website 🌐 Participation is entirely voluntary. We would love to hear from you - from those who took part in our earlier survey (have things changed?) - as well as everyone else. Your voice, your opinion, your experience counts - and really can influence care . . .and by collaborating through Cancer 52 we can not only work together across the rare cancer community but also learn from and support each other. 
We at NCUK will be sharing our NCUK Star Dedications across the whole of December. So much goes into running a patient organisation and we definitely couldn't do it without the help of so many wonderful people. We want to dedicate our first star to... The Patient Community 🌟 Our patient community are the driving force behind our organisation and the reason NCUK exists. They are always first to support everything we do, and demonstrate such courage and bravery every day. We are so privileged to be able to share in our community joining together each day, to support each other and create something amazing ❤️ We thank each and every one of you for everything you do 🙏 To dedicate your star, visit link in bio #NCUKStars #DedicateAStar #StarsofNCUK 
A huge Congratulations to Dr Marc Ooft of @KingsCollegeNHS for winning this year’s 2020 NCUK Research Award at #UKINETS2020. Dr Ooft will be working on Improving Patient stratification through epigenetic and tumour microenvironment analysis of the 100,000 Genomes project Neuroendocrine tumour cohort. We want to say a massive thank you to all of our fundraisers, and a huge thank you to Mr P Moxham, who donated a very generous amount to this award. We appreciate all of you and the contributions you make to allow this important research to take place. Thank you ❤️ #NCUK #NCUKResearch 
Very interesting to hear the work today from Prof Mark Pritchard @gastrolivuni, our 2019 grant winner🏅 Some work and results have been delayed due to the pandemic but great to hear all about about the work on organoids #NCUK #NCUKResearchGrant