• The Valerie Fund Walk & JAG-ONE Physical Therapy 5K Run is going virtual! While the world around us may have significantly changed because of COVID-19, one fact has become abundantly clear- the need to support our kids battling cancer and blood disorders has not diminished.   Our start lines will be spread across the region as we remain united in our same great cause. In recognition of September as National Childhood Cancer Awareness month, we will celebrate the hope and courage of our Valerie Fund patients ‪from September 26th through October 3rd.‬ We encourage you to host your own "mini-walk" from wherever you call home. Engage your family, friends, and neighbors in fun and safe ways.   The 2020 Valerie Fund Walk & JAG-ONE Physical Therapy t-shirt is going to be EPIC, a piece of history we know you’ll want to keep forever! Wear it with pride as you take a walk or run a 5K around your neighborhood, spread the word about The Valerie Fund, host a post-Walk gathering, and take lots of photos while you create another year of cherished memories. Be sure to post photos and videos to your favorite social media platform with #BecauseOfValerie!   JOIN US LIVE AND ONLINE ‪ON SATURDAY, OCTOBER 3rd at 10 am‬. The week will culminate ‪on Saturday, October 3rd‬, as The Valerie Fund Community will come together to honor and celebrate our brave Valerie Fund kids and their families. This online event will feature interviews with our patients, a tour of our new center at Morristown Medical Center, messages from our healthcare heroes, and a message from our founders Sue and Ed Goldstein. Register today at https://thevaleriefund.org/Walk2020/ #becauseofvalerie #forthekids #virtual5k #virtualwalk #hope #heroes #childhoodcancer #blooddisorders #awareness #childhoodcancerawareness
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    The Valerie Fund Walk & JAG-ONE Physical Therapy 5K Run is going virtual! While the world around us may have significantly changed because of COVID-19, one fact has become abundantly clear- the need to support our kids battling cancer and blood disorders has not diminished.   Our start lines will be spread across the region as we remain united in our same great cause. In recognition of September as National Childhood Cancer Awareness month, we will celebrate the hope and courage of our Valerie Fund patients ‪from September 26th through October 3rd.‬ We encourage you to host your own "mini-walk" from wherever you call home. Engage your family, friends, and neighbors in fun and safe ways.   The 2020 Valerie Fund Walk & JAG-ONE Physical Therapy t-shirt is going to be EPIC, a piece of history we know you’ll want to keep forever! Wear it with pride as you take a walk or run a 5K around your neighborhood, spread the word about The Valerie Fund, host a post-Walk gathering, and take lots of photos while you create another year of cherished memories. Be sure to post photos and videos to your favorite social media platform with #BecauseOfValerie!   JOIN US LIVE AND ONLINE ‪ON SATURDAY, OCTOBER 3rd at 10 am‬. The week will culminate ‪on Saturday, October 3rd‬, as The Valerie Fund Community will come together to honor and celebrate our brave Valerie Fund kids and their families. This online event will feature interviews with our patients, a tour of our new center at Morristown Medical Center, messages from our healthcare heroes, and a message from our founders Sue and Ed Goldstein. Register today at https://thevaleriefund.org/Walk2020/ #becauseofvalerie #forthekids #virtual5k #virtualwalk #hope #heroes #childhoodcancer #blooddisorders #awareness #childhoodcancerawareness
  • Children living with #cancer and #blooddisorders came to The Valerie Fund Children’s Centers over 11,000 times last year! Before. After. Cured! Meet Ryan, a former Valerie Fund patient, and successful stem cell transplant recipient. He’d like the world to know about both of his realities – the “before” and the “after” of living with Sickle Cell Disease. His parents describe Ryan as a happy, outgoing, energetic child, but symptoms and complications from multiple sickle cell crises sent him to the hospital on many occasions. During his first crisis, at age five, the pain was so bad he was on a ventilator for a week. Ryan’s family is grateful for the compassionate care their son and brother have received at The Valerie Fund Children’s Center. About one in five people with Sickle Cell Disease have a healthy sibling donor who is a perfect match. Ryan’s 27-year-old brother, Edward, was a 100% match. Since the transplant, Ryan's mom, Robin, shares, “A complete load has been lifted off my shoulders, mentally, physically and spiritually. My anxiety is so much better knowing that Ryan has been cured.” The Valerie Fund will always be there for Ryan and his family. When he is ready to attend college, Ryan will have the opportunity to apply for a Valerie Fund Scholarship. The program has invested millions of dollars in current and former patients like Ryan whose futures are celebrated and never be taken for granted. #becauseofvalerie #forthekids #sicklecelldisease #childhoodcancer #blooddisorders #blooddiseases
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    Children living with #cancer and #blooddisorders came to The Valerie Fund Children’s Centers over 11,000 times last year! Before. After. Cured! Meet Ryan, a former Valerie Fund patient, and successful stem cell transplant recipient. He’d like the world to know about both of his realities – the “before” and the “after” of living with Sickle Cell Disease. His parents describe Ryan as a happy, outgoing, energetic child, but symptoms and complications from multiple sickle cell crises sent him to the hospital on many occasions. During his first crisis, at age five, the pain was so bad he was on a ventilator for a week. Ryan’s family is grateful for the compassionate care their son and brother have received at The Valerie Fund Children’s Center. About one in five people with Sickle Cell Disease have a healthy sibling donor who is a perfect match. Ryan’s 27-year-old brother, Edward, was a 100% match. Since the transplant, Ryan's mom, Robin, shares, “A complete load has been lifted off my shoulders, mentally, physically and spiritually. My anxiety is so much better knowing that Ryan has been cured.” The Valerie Fund will always be there for Ryan and his family. When he is ready to attend college, Ryan will have the opportunity to apply for a Valerie Fund Scholarship. The program has invested millions of dollars in current and former patients like Ryan whose futures are celebrated and never be taken for granted. #becauseofvalerie #forthekids #sicklecelldisease #childhoodcancer #blooddisorders #blooddiseases
  • Meet the newest stars of our Valerie Fund Walk PSA! Our patients did a fabulous job helping us raise awareness and making beautiful signs! #becauseofvalerie #forthekids #psa #childhoodcancer #childhoodcancerawareness #blooddisorder #blooddisorderawareness #walkathon
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    Meet the newest stars of our Valerie Fund Walk PSA! Our patients did a fabulous job helping us raise awareness and making beautiful signs! #becauseofvalerie #forthekids #psa #childhoodcancer #childhoodcancerawareness #blooddisorder #blooddisorderawareness #walkathon
  • Our Thursday #healthcareheroes posts are back with a special story from Dr. Steinberg about the amazing work she has been doing during #covid19! Make sure to check out Dr. Steinberg's story here: "During the COVID-19 pandemic I’ve been continuing to provide clinical care to patients through telemedicine in our outpatient and inpatient settings. This has allowed me to maintain continuity of care and provide services to patients without them incurring extra risk of COVID-19 infection by traveling to the hospital. Patients have appreciated the opportunity to work on adjusting to their medical conditions, treatments, as well as the multitude of changes that have accompanied the pandemic. I’ve also been involved in various research initiatives to better understand how COVID-19 is affecting the mental health of our patients, as well as their interactions with the medical system. This includes helping to form a consortium of sites across the tristate area through which we are studying the impact of COVID-19 on patient and families. I also led a paper capturing how pediatric psychologists providing consultation liaison services across the country have adjusted their practice during the pandemic. As the impact on front-line providers is becoming more and more clear, I’ve also been part of initiatives to reach these individuals. I’ve done lectures on coping with end of life and grief, and am collaborating on a research project to understand the impact the COVID-19 pandemic has had on all members of the teams working in pediatric hematology, oncology and stem cell transplantation across the tristate area. Additionally, I’ve been working to reach the greater community through contributing to articles and creating psychoeducational materials. This has included working with a multidisciplinary group in the hospital, to re-envision how to provide services and support to patients with restrictions in place to COVID-19." #becauseofvalerie #forthekids #heroesworkhere #hospitalhero #healthhero
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    Our Thursday #healthcareheroes posts are back with a special story from Dr. Steinberg about the amazing work she has been doing during #covid19! Make sure to check out Dr. Steinberg's story here: "During the COVID-19 pandemic I’ve been continuing to provide clinical care to patients through telemedicine in our outpatient and inpatient settings. This has allowed me to maintain continuity of care and provide services to patients without them incurring extra risk of COVID-19 infection by traveling to the hospital. Patients have appreciated the opportunity to work on adjusting to their medical conditions, treatments, as well as the multitude of changes that have accompanied the pandemic. I’ve also been involved in various research initiatives to better understand how COVID-19 is affecting the mental health of our patients, as well as their interactions with the medical system. This includes helping to form a consortium of sites across the tristate area through which we are studying the impact of COVID-19 on patient and families. I also led a paper capturing how pediatric psychologists providing consultation liaison services across the country have adjusted their practice during the pandemic. As the impact on front-line providers is becoming more and more clear, I’ve also been part of initiatives to reach these individuals. I’ve done lectures on coping with end of life and grief, and am collaborating on a research project to understand the impact the COVID-19 pandemic has had on all members of the teams working in pediatric hematology, oncology and stem cell transplantation across the tristate area. Additionally, I’ve been working to reach the greater community through contributing to articles and creating psychoeducational materials. This has included working with a multidisciplinary group in the hospital, to re-envision how to provide services and support to patients with restrictions in place to COVID-19." #becauseofvalerie #forthekids #heroesworkhere #hospitalhero #healthhero
  • We are so excited to thank Run Sponsor @jag_onept for their support of The Valerie Fund Walk & JAG-ONE Physical Therapy 5K run on October 3rd! They have been an integral part of helping us support children with cancer & blood disorders! #becauseofvalerie #forthekids #sponsor
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    We are so excited to thank Run Sponsor @jag_onept for their support of The Valerie Fund Walk & JAG-ONE Physical Therapy 5K run on October 3rd! They have been an integral part of helping us support children with cancer & blood disorders! #becauseofvalerie #forthekids #sponsor
  • Meet Joyce! Last year, her family proudly watched as she received her white coat at a symbolic ceremony welcoming members of the Rutgers University Medical School Class of 2023. Joyce’s four-year journey to becoming a physician had officially begun. The Valerie Fund supports children and young adults like Joyce who have overcome medical challenges and have found the resilience to move forward, stronger and more resourceful from these difficult experiences. One day, in the not so distant future, Joyce’s own patients will benefit from her extraordinary care and compassion. Joyce has lived with Sickle Cell Disease, a complex condition that can present dangerous complications, her whole life. She has been on the receiving end of some of the best medical and psychosocial healthcare in New Jersey. Joyce was treated at The Valerie Fund Children’s Centers at St. Barnabas Medical Center and at Newark Beth Israel, a designated Comprehensive Sickle Cell Center. The Valerie Fund Scholarship Program awarded 94 current and former Valerie Fund patients over $350,000 to help cover the cost of their post-secondary education in 2020-2021. Joyce, a six-time recipient is excited to being another step closer to becoming a member of the medical community! https://www.thevaleriefund.org/index.php #becauseofvalerie #forthekids #sicklecelldisease #sicklecell #sicklecellwarrior #sicklecellawareness #sicklecellanemia
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    Meet Joyce! Last year, her family proudly watched as she received her white coat at a symbolic ceremony welcoming members of the Rutgers University Medical School Class of 2023. Joyce’s four-year journey to becoming a physician had officially begun. The Valerie Fund supports children and young adults like Joyce who have overcome medical challenges and have found the resilience to move forward, stronger and more resourceful from these difficult experiences. One day, in the not so distant future, Joyce’s own patients will benefit from her extraordinary care and compassion. Joyce has lived with Sickle Cell Disease, a complex condition that can present dangerous complications, her whole life. She has been on the receiving end of some of the best medical and psychosocial healthcare in New Jersey. Joyce was treated at The Valerie Fund Children’s Centers at St. Barnabas Medical Center and at Newark Beth Israel, a designated Comprehensive Sickle Cell Center. The Valerie Fund Scholarship Program awarded 94 current and former Valerie Fund patients over $350,000 to help cover the cost of their post-secondary education in 2020-2021. Joyce, a six-time recipient is excited to being another step closer to becoming a member of the medical community! https://www.thevaleriefund.org/index.php #becauseofvalerie #forthekids #sicklecelldisease #sicklecell #sicklecellwarrior #sicklecellawareness #sicklecellanemia
  • Camp Happy Times is going Virtual! Make sure to register by July 31st to join in all the fun! www.tinyurl.com/CHTapp2020 #becauseofvalerie #forthekids #virtualcamp #virtualfun #camp #camplife #camphappytimes
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    Camp Happy Times is going Virtual! Make sure to register by July 31st to join in all the fun! www.tinyurl.com/CHTapp2020 #becauseofvalerie #forthekids #virtualcamp #virtualfun #camp #camplife #camphappytimes
  • So excited to share this exciting news! We hope you will help these awesome #kidshelpingkids reach their goal of $125,000! #becauseofvalerie #forthekids Posted @withregram • @kidsicecancer AUGUST 21st! Is our new game date! The game is now at the RWJ Barnabas Health Hockey House! The game will be from 7-10pm. We have raised $121,264 so far! Let’s break our goal of $125,000! Thank you to everyone who has helped and donated, it would mean so much to us if you came out and supported us on August 21st!
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    So excited to share this exciting news! We hope you will help these awesome #kidshelpingkids reach their goal of $125,000! #becauseofvalerie #forthekids Posted @withregram • @kidsicecancer AUGUST 21st! Is our new game date! The game is now at the RWJ Barnabas Health Hockey House! The game will be from 7-10pm. We have raised $121,264 so far! Let’s break our goal of $125,000! Thank you to everyone who has helped and donated, it would mean so much to us if you came out and supported us on August 21st!
  • Join us in fighting for Sophie, the amazing Queen of Positivity!! Sophie is an eight-year-old budding astrophysicist, all around funny, beautiful, brave, and incredibly strong girl. She was recently diagnosed with stage IV Neuroblastoma metastatic cancer. Join us at The Valerie Fund Walk & JAG-ONE Physical Therapy 5K on October 3rd to help kids like Sophie who are battling cancer and blood disorders! #becauseofvalerie #forthekids #littleandbrave #strength #childhoodcancer #walkathon #5krun
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    Join us in fighting for Sophie, the amazing Queen of Positivity!! Sophie is an eight-year-old budding astrophysicist, all around funny, beautiful, brave, and incredibly strong girl. She was recently diagnosed with stage IV Neuroblastoma metastatic cancer. Join us at The Valerie Fund Walk & JAG-ONE Physical Therapy 5K on October 3rd to help kids like Sophie who are battling cancer and blood disorders! #becauseofvalerie #forthekids #littleandbrave #strength #childhoodcancer #walkathon #5krun
  • Today we are featuring another touching story of the amazing work our #healthcareheroes are doing in our centers! Today’s story features Stephanie, one of our Social Workers! “Dad is a single dad caring for C. During this pandemic Dad was let go from his place of employment. They had given him a severance package but health insurance was ending at the end of the month. Dad forgot to contact Cobra so on the first of the month C had no health insurance. Overwhelmed, Dad didn't know where to go or who to turn to. We worked together to contact cobra and his place of employment. They said that C's health insurance wouldn't be active for at least 2 weeks. Spending many hours on the phone and contacting every supervisor, we were able to file for an expediated application and get her insurance reinstated within 2 days. With emergency funds we were able to help cover the cost of rent to help offset the extreme monthly payment for cobra. She now has health insurance and has one more cycle of chemo!” #becauseofvalerie #forthekids #healthcarehero #covid19 #pandemic #pandemichero
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    Today we are featuring another touching story of the amazing work our #healthcareheroes are doing in our centers! Today’s story features Stephanie, one of our Social Workers! “Dad is a single dad caring for C. During this pandemic Dad was let go from his place of employment. They had given him a severance package but health insurance was ending at the end of the month. Dad forgot to contact Cobra so on the first of the month C had no health insurance. Overwhelmed, Dad didn't know where to go or who to turn to. We worked together to contact cobra and his place of employment. They said that C's health insurance wouldn't be active for at least 2 weeks. Spending many hours on the phone and contacting every supervisor, we were able to file for an expediated application and get her insurance reinstated within 2 days. With emergency funds we were able to help cover the cost of rent to help offset the extreme monthly payment for cobra. She now has health insurance and has one more cycle of chemo!” #becauseofvalerie #forthekids #healthcarehero #covid19 #pandemic #pandemichero
  • The COVID-19 global pandemic doesn’t mean our kids have needed any less treatment, in fact, our Valerie Fund Children’s Centers have had more to do for our patients and their families. Our goal for The Valerie Fund Walk & JAG-ONE Physical Therapy 5K is $1,000,000 but we need your help to get there! Sign up to run, walk or donate today to show your support! Link in Bio! #becauseofvalerie #forthekids #walkathon #5krun #donatetoday
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    The COVID-19 global pandemic doesn’t mean our kids have needed any less treatment, in fact, our Valerie Fund Children’s Centers have had more to do for our patients and their families. Our goal for The Valerie Fund Walk & JAG-ONE Physical Therapy 5K is $1,000,000 but we need your help to get there! Sign up to run, walk or donate today to show your support! Link in Bio! #becauseofvalerie #forthekids #walkathon #5krun #donatetoday
  • “On March 10, 2018, we heard the words 'Colin has cancer.' Our perfect three-year-old boy had a grapefruit-sized Wilms tumor on his left kidney and it had spread to his lungs. Two years later… after multiple surgeries, countless rounds of chemotherapy, and radiation, infections, and all the other side effects and scars that come with it… he’s still our five year old funny, intelligent and strong boy.”​​​​​​​ - Colin's Mom. Colin and his family are walking on October 3rd in Verona Park... will you be joining them? #becauseofvalerie #forthekids #walkathon #childhoodcancer #childhoodcancerawareness
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    “On March 10, 2018, we heard the words 'Colin has cancer.' Our perfect three-year-old boy had a grapefruit-sized Wilms tumor on his left kidney and it had spread to his lungs. Two years later… after multiple surgeries, countless rounds of chemotherapy, and radiation, infections, and all the other side effects and scars that come with it… he’s still our five year old funny, intelligent and strong boy.”​​​​​​​ - Colin's Mom. Colin and his family are walking on October 3rd in Verona Park... will you be joining them? #becauseofvalerie #forthekids #walkathon #childhoodcancer #childhoodcancerawareness
  • Our Valerie Fund #healthcareheroes do amazing work each and every day and that has not stopped during #covid19. Today's story is written by Educational Liaison Joann! "For the past 7 years every spring we have had a "Pizza Party". This is a yearly event where high school age patients and older get together to talk about their feelings about their treatment and to support peers who are in active treatment to be positive about their future. Valerie Fund kids look forward to this event each year, but then COVID came along and stopped the ability to do this in person. Well, we decided to do this virtually through zoom! As is turns out some patients who are not in the area were able to attend! What a great way to keep this tradition going!" #becauseofvalerie #forthekids #hero
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    Our Valerie Fund #healthcareheroes do amazing work each and every day and that has not stopped during #covid19. Today's story is written by Educational Liaison Joann! "For the past 7 years every spring we have had a "Pizza Party". This is a yearly event where high school age patients and older get together to talk about their feelings about their treatment and to support peers who are in active treatment to be positive about their future. Valerie Fund kids look forward to this event each year, but then COVID came along and stopped the ability to do this in person. Well, we decided to do this virtually through zoom! As is turns out some patients who are not in the area were able to attend! What a great way to keep this tradition going!" #becauseofvalerie #forthekids #hero
  • The Valerie Fund’s Sickle Cell Program at Newark Beth Israel Medical Center is part of a team that treats more patients than any other hospital in New Jersey and is recognized as a Comprehensive Sickle Cell Center! Last year over 11,000 patients visited our center to receive world class care! #becauseofvalerie #forthekids #sicklecell #sicklecellwarrior #sicklecellawareness
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    The Valerie Fund’s Sickle Cell Program at Newark Beth Israel Medical Center is part of a team that treats more patients than any other hospital in New Jersey and is recognized as a Comprehensive Sickle Cell Center! Last year over 11,000 patients visited our center to receive world class care! #becauseofvalerie #forthekids #sicklecell #sicklecellwarrior #sicklecellawareness
  • Happy Father’s Day to all our Valerie Fund Dads! Wishing everyone a great day! #becauseofvalerie #fathersday #fathers #number1dad
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    Happy Father’s Day to all our Valerie Fund Dads! Wishing everyone a great day! #becauseofvalerie #fathersday #fathers #number1dad
  • Today is Sickle Cell Disease Awareness Day! Today and everyday The Valerie Fund continues to support patients with Sickle Cell Disease and other blood disorders! #becauseofvalerie #forthekids #sicklecellawareness #sicklecelldisease
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    Today is Sickle Cell Disease Awareness Day! Today and everyday The Valerie Fund continues to support patients with Sickle Cell Disease and other blood disorders! #becauseofvalerie #forthekids #sicklecellawareness #sicklecelldisease